ADDS 2025

Featured Speaker

Dr. Nadia Sethi

Dr. Nadia Sethi

Co-Chair and Advocacy Committee

Northeast ALS Consortium Patient Education


Dr. Nadia Sethi is Co-Chair of the Northeast ALS Consortium Patient Education and Advocacy Committee. A dentist by training, she transitioned to research focused ALS advocacy after her husband's diagnosis with the disease in 2019. She serves on the Programmatic Panel for the Department of Defense’s ALS Research Program, the Scientific Advisory Council for the International Alliance of ALS/MND Associations, and the Leadership Board of Genetic ALS and FTD: End the Legacy. She also manages a social media community of over 7,000, ALS Clinical Trials and Research, to share scientific content with the patient community. Previously she served as Director of Community Outreach at ALS TDI.  Nadia is currently pursuing a Master’s in Pharmacy with a focus on Clinical Pharmacogenomics and Precision Medicine at University of Florida.